United Leukodystrophy Support Community, including CADASIL The United Leukodystrophy (ULF) copes with all leukodystrophies which are rare genetic disorders that affect the central nervous system by disrupting the growth or maintenance of the myelin sheath that insulates nerve cells. Inspire forum connects patients, families, friends, caregivers and health professionals for health and wellness support. Inspire connects with others who know what you're going through.
This forum is located at http://www.ulf.org under “Chat with Others” and search “CADASIL” or you can go to the link at: http://www.inspire.com/groups/united-leukodystrophy-foundation/ Once you have joined you will be able go straight to the CADASIL Community.
We encourage everyone to join the CADASIL inspire support community.