CADASIL Family Forum (since 2007)
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BeckyTX

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Posts: 2
 #1 
Good morning! I appreciate all of the things shared here.
I’m almost 52 and just got the results back this past Friday. I’ve just contacted my neurologist this morning to see where we go from here.
I’m terrified of what “no cure” and what management of symptoms will look like going forward from here, especially since I have 2 young children (7 and almost 10).
I started taking L-arginine on Sunday and already feel some better. I’ve had headaches everyday since early February and feel some relief and less fog.
I’m increasing my walking (I was good with exercise until the major migraines hit in February and have been exhausted ever since) after reading how important that will be.
Any insights and encouragement are appreciated. My mom is 75 and in a memory care facility with vascular dementia most likely from CADASIL. Scary to picture myself like that.
Y’all have a good day...thanks in advance!

Becky
KSmith9586

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Posts: 2
 #2 
I am 57 and was diagnosed with Cadasil at 54. It was shocking at first. Since then I have learned to embrace my circumstances and look forward to my new journey in life. I have decided this will Not define me! I am surrounded by an amazing family that supports me 100%! I take Zonisamide for my migraines and I stay away from anything that triggers them. I also take antidepressants and antipsychotic drugs. I know at first it’s a lot to accept the new challenges that come with Cadasil; but it’s Not a death sentence. Take it very slow and accept the things you can not do and concentrate on things that you can! God Bless you in your new journey.
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Karen Smith
BeckyTX

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Posts: 2
 #3 
Thank you for sharing this! I appreciate your good outlook.

"Do all the good you can, by all the means you can, in all the places you can, to all the people you can, as long as you ever can." --John Wesley
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