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VELMADON

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Posts: 9
 #21 
Anne,
I have not officially been diagnosed with Cadasil (kit coming tomorrow, results in 28 days - my neurologist and I are fairly certain I have it), but last June I had an episode of vertigo that lasted approximately 3 weeks.  At the time of course we had no idea that this could be part of the presentation of Cadasil, but now I'm seeing more and more people with Cadasil describing vertigo symptoms.  It did finally resolve and I haven't had anymore problems with the vertigo, so hopefully it will go away soon!

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Sue Palmer
vuyi

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Posts: 6
 #22 
How  I am experiencing darkness in my nukless  and wake up with my hand swollen and leg from same side.  I am on asprin .Please help  with your views.

Hope the best for you all .May God Bless.
vuyi

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 #23 

Correction meant to say Hi All.

vuyi

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 #24 
what is Vertigo please.
youngone

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Posts: 8
 #25 

I have just been diagnosed with cadasil at age 21 after having two tia's and an ischemic stroke. it has now been 8months since my stroke and am now experiencing vertigo(dizziness). My ent says that the carotid artery that runs behind the eardrum is not getting enough blood and is causing this. He seems to think that this is a side affect of the disorder


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courtney(21 and scared)
MariaSmuts1

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 #26 
I had a seizure / massive migrain attack on 17 August 2011.  I was admitted to casualties.  Various special investigations were performed.  However, I was released after 5 days in hospital - without a definate diagnosis.

I made an appointment with an excellent Neurologist who after a thorough consultation (family history, etc) and with the help of the CT SCAN that was done in hospital in August 2011, diagnosed CADASIL.  This was confirmed by performing a skin biopsy. 

Yes, as we all experienced, the final confirmation was devastating.

What was most upsetting is that my father had the same disease.  We experienced the process personally and emotionally.  I know what it does to a person. 

No matter how I try to look at this personal dilemma, I can't help returning to the initial memory of the path my dad had to 'walk'.  Also, realising that my children, my brother and my sister's children - at least one of them might have inherited the same gene:  Notch3...  This is heartbreaking.

As for Jules (21/01/2011) your sad story could have been a duplicate of my tiny mother's case with my dad - 9 / 10 years ago.  It is all very familiar.

Unfortunately, I was young and we did not realise that my dad actually did have CADASIL.  I wish I had asked him more questions about his very lonely illness.  Although he did go for a MRI scan, no doctor at that stage could diagnose his disease.  Too soon, he lost his speech and just as soon he could not whisper - he tried, but eventually we could not understand what he was trying to say.  He also struggled to swallow (amongst many things we all accept as natural).  All he could do was hear and see.  He understood everything.  He could nod:  yes & no.  He passed away in November 2004.  His brother, 7 years younger than him, passed away January 2012 - with similar symptoms.  Not all doctors / neurologists are familiar with the typical signs, as was proven in my case in August 2011 - when the specific Neurologist released me from hospital without a diagnosis.

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RIA SMUTS
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SOUTH AFRICA
joe

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Posts: 1
 #27 
hi my name is joe my wife donna was diagnosed with cadisal after a severe stroke in june 2012. the doctor had been treating her for deppresion for over 10yrs.her cond. over that ten yr. period got progresably worse .the year before her stroke she went from 135lbs. dow to 95lbs.and was in almost a vegative state. we changed doctors. and there diagnoses was she had ms.10 days after that she had her stroke.she spent 5wks.in the hospital learning to walk talk eat and communicate.and after several mri and cat scans.they tested for cadisal. and the results came back positive.she is back at home and is doing great she is walking talking communicating .short term memory is bad. but we can live with that. recently she was put on ritalin and fish oils also vit.d along with her other meds. and seems to have perked her up a bit donna just turned 65yrs. old we both live for today the future the future.lots of love and understanding works great. thanks
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joe le masurier
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