23 days to go until Worldwide Rare Disease Day. See what is happening in your state by clicking on this link. http://rarediseaseday.us/events/events/
CADASIL Together We Have Hope (CTWHH) will be representing CADASIL by attending and speaking at the Texas State Capitol “Rare Disease Day 2013 Rally” on February 28, 2013 from 8:30am to 10:30 am. If you live in Texas and can come, please let us know. We will be bringing awareness for rare diseases including CADASIL There will be various speakers including a director from CTWHH, CADASIL patient, doctors, nurses, researchers, dignitaries, musicians, special guests, patient, and families with inspiring stories. We will also have a table with information on CADASIL, etc. If you need brochures, etc. for your event, please let us know.