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Byds

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23 days to go until Worldwide Rare Disease Day.  See what is happening in your state by clicking on this link.  http://rarediseaseday.us/events/events/

CADASIL Together We Have Hope (CTWHH) will be representing CADASIL by attending and speaking at the Texas State Capitol “Rare Disease Day 2013 Rally” on February 28, 2013 from 8:30am to 10:30 am.  If you live in Texas and can come, please let us know.  We will be bringing awareness for rare diseases including CADASIL There will be various speakers including a director from CTWHH, CADASIL patient, doctors, nurses, researchers, dignitaries, musicians, special guests, patient, and families with inspiring stories.  We will also have a table with information on CADASIL, etc.  If you need brochures, etc. for your event, please let us know.


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CADASIL Together We Have Hope NonProfit Organization
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