Let’s get the word out for CADASIL and Represent CADASIL this week or next on Worldwide Rare Disease Day – take five minutes to participate. Print out the attached flyer.
Take a picture or yourself, family or even your pet holding the attached sign “I Represent CADASIL on Rare Disease Day”. You can post it on face book or e-mail the picture at firstname.lastname@example.org to me. I will only use your first name if you wish. You don’t have to have CADASIL to do this.
I will post this on our website; create a video for the worldwide rare disease and USA Rare Disease website. We will get the word out about CADASIL this year!!!!!!